In Washington, D.C., the American Lung Association recently hosted its third Respiratory Advocacy Day on September 10, 2025, uniting lung health champions from every corner of the United States. With over 35 million individuals affected by lung diseases, the event aimed to amplify the urgent need for legislative action to ensure access to lifesaving care, coverage, and public health priorities.
As chronic respiratory diseases continue to impact millions, this year’s Respiratory Advocacy Day emerged against a backdrop of pressing public health issues. Federal public health agencies face severe funding cuts, compounded by environmental challenges such as smoke from wildfires, outbreaks of respiratory illnesses, and the ongoing threats posed by seasonal flu incidents. These conditions heighten the vulnerability of individuals living with conditions like Chronic Obstructive Pulmonary Disease (COPD), asthma, and pulmonary fibrosis.
The Growing Need for Advocacy
In the U.S. alone, over 11.7 million people suffer from COPD, nearly 28 million from asthma (including around 4.8 million children), and approximately 100,000 from pulmonary fibrosis. An alarming number of individuals are newly diagnosed with pulmonary arterial hypertension each year, necessitating continuous access to affordable and quality healthcare. As these advocates gathered on Capitol Hill, their collective voice underscored the need for sustainable healthcare solutions to address the unique challenges posed by lung diseases.
Harold Wimmer, the President and CEO of the American Lung Association, emphasized the importance of advocacy. “Our Respiratory Advocacy Day Lung Health Champions, united from every corner of the country, are courageously sharing their powerful voices with decision-makers,” he stated. They were there to advocate for vital therapies, healthcare coverage, and public health programs that support lung health and wellbeing.
Key Legislative Priorities
During the event, participants engaged with lawmakers on several crucial issues, focusing specifically on:
The SOAR Act: Advocacy for the Supplemental Oxygen Access Reform (SOAR) Act was a prominent topic. This legislation aims to improve Medicare access to portable liquid oxygen, enabling individuals with lung conditions to maintain mobility and an active lifestyle. Currently, accessing portable oxygen has become nearly impossible under the existing regulations.
Healthcare Tax Credits: Advocates called for the extension of enhanced healthcare tax credits. These credits significantly help millions afford their health insurance premiums, particularly for those buying plans on the Marketplace. Without these tax credits, many would struggle to maintain appropriate healthcare coverage.
- Funding for Public Health Programs: Participants asked lawmakers to protect the CDC and its vital public health programs. Specifically, programs like the National Asthma Control Program play a crucial role in reducing emergency visits and hospitalizations due to asthma.
Training and Engagement Opportunities
In addition to legislative advocacy, participants had access to training sessions that empowered them to confidently share their stories and engage effectively with policymakers. These trainings not only prepare advocates for Capitol Hill interactions but also encourage their involvement in ongoing advocacy efforts within their communities and at state and local levels.
Through the Lung Association’s Lung Action Network, these advocates can continue to raise awareness about lung health issues and effect change beyond the walls of Congress.
Progress Through Unity
This year, the American Lung Association built upon the successful advocacy efforts seen in past events like LUNG FORCE Advocacy Day. During previous events, Lung Force Heroes were instrumental in securing an impressive increase of $500 million in lung cancer research funding from the National Institutes of Health, reflecting a growing recognition of the significance of lung health.
Conclusion: The Path Forward
The Respiratory Advocacy Day serves as a critical reminder of the ongoing challenges faced by individuals with lung disease and the importance of uniting voices to advocate for meaningful change. By collaborating with lawmakers and stakeholders dedicated to health and wellness, advocates aim to inspire action that can lead to improved health outcomes for millions affected by chronic lung conditions.
As the American Lung Association continues its mission to enhance lung health care and preventive measures, the support of the public remains essential. The dedication displayed by lung health champions on Capitol Hill is a clarion call for increased attention to lung health challenges and the need for a robust policy response to protect the rights and healthcare needs of those living with pulmonary diseases.
In a time where health disparities are magnified, initiatives like the Respiratory Advocacy Day demonstrate that public advocacy can lead to transformative changes in healthcare policies, ensuring that no one is left behind due to their lung health conditions. Those interested in making a difference can find more information about the American Lung Association and opportunities to engage in advocacy at Lung.org/RAD.
